Abe Astur, a two year old toddler from Winchester, suffers from a rare form of cerebral palsy called spastic diplegia.
Spastic diplegia causes the sufferer to have tight and stiff muscles, particularly in the limbs.
Therefore, this makes walking for Abe very difficult so he has the help of a walker. Not all spastic diplegia sufferers exhibit the same symptoms.
The family is raising money for a pioneering treatment in America called Selective Dorsal Rhizotomy. The aim of SDR is to relieve muscle spasticity.
The operation costs around £40,000 but physiotherapy, travel expenses and accommodation will cost an extra £10,000 so they are raising a total of £50,000.
A sponsored walk was held at Abby Gardens in Winchester, which gave his parents, Leigh and Gavin, a chance to raise awareness of the condition.
Abe and his family, followed by many friends and supporters of the campaign, joined in too and walked a lap around the park. A stall with cakes and coffee was also there to help raise extra money.
Gavin, his father, said: “Despite the illness, we are a normal happy family. There isn’t much impact on our daily life.”
They have created their own website for the cause which features a blog, a donation page and a gallery. So far they have raised over £25,000.
Good luck Abe!
http://abes-adventure.co.uk/about
Update: Since the sponsored walk last year, Abe has raised just under £40,000.
Update: Abe has had his operation and is recovering.
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